Coping As A Down Syndrome Parent

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Last updated: 2026/10/05

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Doctors Said It Was Rare… But NICU Parents Deserve

During Ashton’s NICU stay he had a PICC line placed in his leg. A blood clot formed and broke loose, traveling to his brain and causing a stroke. Doctors told us this complication was rare, but NICU parents deserve to understand the risks and ask questions when something doesn’t feel right. I

So thankful you realized something was wrong and did something about it!!! So happy you did this just in time for Ashton so no long term problems! Praise God he survived this! 🙏🙏🙏

My son is 6 with that same scar in his leg. It looks like a dimple from when he was in the NICU & had to have all types of tubes inserted in him 😫😫.

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